​Unlike other diseases, where those affected play a prominent role in policy and program design as well as implementation and monitoring, the involvement of TB survivors in  both global and India’s TB control efforts is limited. We believe there is an urgent need to engage, inform and build capacity survivors to become spokespersons for the needs of the TB affected. They need to participate extensively in policy formulation and program design. India needs patient champions to help strengthen program implementation and address issues of deep-seated stigma that continue to persist.

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Given this context, we initiated the formation of a TB Network - that works across India and globally - led and managed by survivors themselves to raise issues relevant to them and identify potential solutions. This network of patients also has experts, advocates and cross country partners.

These survivors come from diverse geographies, countries, economic strata, and experiences and work together to highlight issues in TB   from a community perspective.

 

BROADLY, THE NETWORK AIMS TO ACHIEVE THE FOLLOWING:

• Work together to identify key issues around TB care

• Formulate recommendations and highlight innovations for the government to improve care

• Advocate to the government (national and state)  and key stakeholders on these issues

• Work to raise awareness among communities and 

• Work with the private sector to sensitize and improve care 

• Uphold and protect rights and highlight expectations of those affected 

• Highlight cases of neglect, poor delivery, maltreatment

• Engage all key stakeholders- politicians, officials, media on key issues

• Provide support to those suffering gaps in diagnosis, treatment, nutrition and other challenges